Yesterday, Laura had a check up with her Cardiologist after being home only 4 days
I could not think of a better way to present this information than how my wife, Tara, put it in an email earlier today. That is right, I am blatantly stealing from my wife.
"I cannot express how deeply thankful Marcus and I are to each of you for your prayers for Laura. We truly believe in the power of prayer.
Laura is doing very well. She had a great checkup yesterday with the cardiologist. Her lungs are still a little wet, but not congested. The medication will continue to improve this. She weighs 13lbs. and is 22.5” long, and is such a wiggle worm! She is definitely going to keep us on our toes.
Laura still needs the feeding tube, while she works on bottle feeding. This is a slow process, because she has a very sensitive gag reflex. Please pray that we will be successful with this."
In addition to the above information, Laura also had her stitches out yesterday. She did not enjoy this process. However, she did calm down once they were out.
Laura is much more active now. This is both fun and challenging. Challenging because we find our selves ducking and dodging legs and feet during diaper changes. Nothing like getting kicked while trying to change your daughter.
She smiles constantly, which just melts our hearts. The bottom line is that she is just to cool for words.
Tuesday, September 22, 2009
The latest info
Labels:
child,
children,
Dad,
Down Syndrome,
encouragement,
feeding,
heart surgery,
Lasiks,
Laura,
NG Tube,
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This is such wonderful news!! We will continue to pray for Laura and you as well. Love you all!
ReplyDeleteHello!
ReplyDeleteI found your blog and wondered if you had heard of the Oley Foundation yet.
We offer free information and peer support for families with a member on home tube or IV feeding. Check out our website at www.oley.org.
In particular you might be interested in the
• Tube Feeding Tips page
http://www.oley.org/tubetalks.html
• Meet Patients Section (try all three links)
http://www.oley.org/volunteers.html
http://www.oley.org/call.html
http://www.oley.org/forum.htm
• Tube Feeding Complication Chart
http://www.oley.org/charts/newHEN.pdf
If you have any questions or would like to be introduced to another family, feel free to contact me.
Warm regards,
Roslyn Dahl
Oley Foundation Staff Member
dahlr@mail.amc.edu
(800) 776-OLEY