The Creed of Babies with Down Syndrome

My face might be different
But my feelings are the same
I laugh and I cry... See More
And I take pride in my gains
I was sent here among you
To teach you to love
As God in the heavens
Looks down from above
To him I'm no different
His love knows no bounds
It's those here among you
In cities and towns
That judge me by standards
That man has imparted
But this family I've chosen
Will help me get started
For I'm one of the children
So special and few
That came here to learn
The same lessons as you
That love is acceptance
It must come from the heart
We all have the same purpose
Though not the same start
The Lord gave me life
To live and embrace
And I'll do as you do
But at my own pace.

Author Unknown

Dancing Days Are Here Again

Never miss an opportunity to quote a Led Zepplin song.

As some of you know, Tara nad Laura were in Fort Worth for the wedding of one of our friends from college. I stayed home, because I had to work both Friday and Saturday. This weekend was something that I had been looking forward to since we had first found out about the wedding. An entire weekend all to myself. I had missed alone time very much.

I was an only child, and I loved it. One thing about being an only child is that you get used to the idea of time alone. That is just the way it is when you have working parents. I do not regret it. I had planty of friends to run around with. Some of the trouble we got into my parent sitll do not know about (thank goodness). When I was alone, I still kept myself busy. Plenty of books to read, tv to watch, home work to be done (not that I did much of it) and my imagination to get lost in.

When Tara and I got married that all changed. She tells me for the better, and I believe her. But part of me still likes a little alone time now and then. It can be hard to come by when your married. Tara has always been very understanding and tried to give me some time to myself when she can. And for that I am grateful.

Then, last year God blessed us with Laura. With everything we went through with her last year, that alone time got harder and harder to come by. The strange thing is that I found that I did not miss it as much. Here was this semi gelatinous, alien like creature, that is just now figuring out how to become mobile and I can not get enough of her.

In my current job at R.E.I., I usually get one day off during the week. Tara always asks if I want to keep Laura with me. Sometimes I say yes. Lately I have been sending Laura to school on my day off so I can get some rest. Retail sales wears me out. So this weekend I was going to get an entire weekend to myself, outside of work and church. Boy was I looking forward to it.

So after all of this what did I spend my free time this weekend doing? Missing my wife and daughter. Wishing I had gone with them (and I hate weddings). Now they are home and I am much more happy. Weird how things can change and you can be very happy about it.

Lonely

Well, I am enjoying some time alone. However, I am missing my wife and daughter terribly. I know this is just a short post but I wanted to get this off of my chest.

Free time

Well for the first time in over ten monthes I have an entire weekend to myself. I am not sure what to do with it.

Obviously I have to go to work today and tomorrow, but then what? No muchkin to play with. No wife to pester when I am bored. How am I going to enteraine myself? These are the questions that burn in my mind.

Updates on Laura. She sits on her own. She cannot yet pull herself into a sitting position from laying down. But she tries. She is figuring out how to drink without a bottle or sippy cup. This is huge. She is actually ahead of some of her class mates on this skill. She is working on crawling. The big issue is her upper boddy strength. We have several exercises to help her work on this. She is basically coming right along.

Updates coming.

I promise an update will becoming in the next few days.

Updates coming.